August 16, 2006 - Posted at 5:14 p.m. CDT
JONESBORO, AR -- Cystic Fibrosis is a life-threatening genetic disease that affects approximately 30,000 people in the United States. More than 10 million Americans are genetic carriers and while there is no cure...those with the disease are living longer thanks to advances in medical research and technology.
Wednesday a fundraiser to benefit the Cystic Fibrosis Foundation was held at the Airgas facility in Jonesboro where donors were treated to view the "future" designed by the team from Orange County Choppers.
"It has 131 Cubic Air change Engine, 127 Horsepower...it's just a beautiful bike," smiled Buddy Van of Airgas.
The Airgas "Future" Chopper was designed and built by Orange County Choppers Paul Teutuls, Sr. and his son Paul, Jr. About 100 folks in Region 8 got a closer look Wednesday as it was on display as a fundraiser for the Cystic Fibrosis Foundation.
One of the main ways the Cystic Fibrosis Foundation raises money is through fundraising events like this and with every dollar donated its one step closer to discovering a cure.
"Usually the life expectancy is about ten years, but now, with these guys doing fundraisers and everything, it's helping us out," said 17-year-old Paragould native Aaron Bugsley who has Cystic Fibrosis, "We're getting new medicine, getting new research and everything. Over 95% of the money from fundraisers goes to the Cystic Fibrosis Foundation."
"If you could see the kids that have it, to just look at them, there's nothing wrong, but later on they have trouble breathing. And it's a bad disease and there's no cure for it," said Vann.
The chopper will be headed to the Gulf States region next.
"It's great to see the little kids at the end of the day when they stay here all day and they come up and give you a hug, it will bring tears to your eyes," said Vann.
"It makes me feel good, glad that someone would do that. I would like to thank Airgas and all the employees for doing it too," said Bugsley, "And everybody that comes in and donates a little money here and there, it helps out a lot."